This project (2014-2016), led by Dr Richard Harding, and funded by Marie Curie, aimed to improve demand for and supply of palliative care for people who identify as lesbian, gay, bisexual and/or trans (LGBT) and are in the later stages of a life-limiting illness.
Research has shown that people who identify as LGBT, and their significant others, may not receive the care they need when facing a life-limiting illness, despite an increased risk of certain cancers. Findings from the ACCESSCare study informed the recent Marie Curie publication ''Hiding Who I Am'': the reality of end-of-life care for LGBT people', and the Care Quality Commission Thematic Review (CQC) ‘A different ending – addressing inequalities in end-of-life care’. The main paper from ACCESSCare is freely available online from the Palliative Medicine website and highlights the additional barriers and stressors that LGBT people may experience when facing advanced illness and in bereavement.
A booklet aims to help individuals to think about:
• Why sexual orientation or gender identity may be important in relation to care needs, and preferences
• The care individuals are entitled to receive
• What to do if you think you have been discriminated against, because of your sexuality or gender identity
• Where to go for more help and information