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  • The lived experience of active Charcot Foot in Diabetes Mellitus

The lived experience of active Charcot Foot in Diabetes Mellitus

Charcot foot is a rare but serious complication of distal, sensory neuropathy most frequently associated with diabetes. It can result in severe foot deformities, ulceration and potentially amputation. Off-loading via a knee length, non-removable plaster cast for an average of six months is gold standard treatment. Unfortunately in the absence of pain, owing to the neuropathy, many patients are extremely reluctant to accept such longstanding treatment.

There is limited research regarding the impact of Charcot Foot on patient experience, with previous work having used quantitative measures to explore quality of life or psychological issues. This research aims to explore the ‘Lived Experience’, or the significance that a diagnosis and treatment of active Charcot Foot has to the lives of those given this diagnosis. To ultimately identify ways to enhance the care of this patient group, this exploration focuses not only on the patient lived experience but also the perceptions of the practitioners who treat them.

Project aims

The project aims to

  • Explore the impact of the active Charcot foot on patients’ lives.
  • Explore clinicians views of perceived patients responses to the diagnosis and management of active Charcot foot
  • Interpret, synthesise and align data from emergent themes pertinent to the patients and clinicians views of the Charcot foot and to use this information to identify areas to enhance patient care and improve quality of life

A PPI group informed the development of the method and ethical approval has been obtained. Data collection using the novel method of photo elicitation and semi-structured interviews is underway. The transcripts of each individual interview will be analysed using Interpretive Phenomenological Analysis. Themes between interviews will then be explored for convergences and divergences in order to extrapolate over-aching themes with theoretical transferability.

Project impact

There is currently very limited research surrounding the impact of Charcot Foot on patient experience, with previous work having used quantitative measures to explore quality of life or psychological states (e.g. depression). Such studies are of limited value to clinicians attempting to make sense of the patient’s responses to diagnosis and the factors associated with compliance or non-compliance of treatments.

Research team

Jody Lucas

Dr Simon Otter

Professor Adrian Bone

Dr Channine Clarke

Output

Articles are in preparation

Partners

Kings College Hospital
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