• Skip to content
  • Skip to footer
  • Accessibility options
University of Brighton
  • About us
  • Business and
    employers
  • Alumni and
    supporters
  • For
    students
  • For
    staff
  • Accessibility
    options
Open menu
Home
Home
  • Close
  • Study here
    • Meet us
    • Open days
    • Virtual tours
    • Upcoming events
    • Applicant days
    • Meet us in your country
    • Chat to our students
    • Ask us a question
    • Order a prospectus
    • Our campuses
    • Our four campuses
    • Accommodation options
    • Our halls
    • Helping you find a home
    • What you can study
    • Find a course
    • Full A-Z course list
    • Explore our subjects
    • Our academic departments
    • How to study with us
    • Undergraduate application process
    • Postgraduate application process
    • International student application process
    • Apprenticeships
    • Applying through Clearing
    • Transfer from another university
    • Fees and financial support
    • Undergraduate finance
    • Postgraduate finance
    • Our funding and support options
    • Supporting you
    • Your wellbeing
    • Student support and guidance tutors
    • Study skills support
    • Careers and employability
  • Research
    • Research and knowledge exchange
    • Research and knowledge exchange organisation
    • The Global Challenges
    • Centres of Research Excellence (COREs)
    • Research Excellence Groups (REGs)
    • Our research database
    • Information for business
    • Community University Partnership Programme (CUPP)
    • Postgraduate research degrees
    • PhD research disciplines and programmes
    • PhD funding opportunities and studentships
    • How to apply for your PhD
    • Research environment
    • Investing in research careers
    • Strategic plan
    • Research concordat
    • News, events, publications and films
    • Featured research and knowledge exchange projects
    • Research and knowledge exchange news
    • Inaugural lectures
    • Research and knowledge exchange publications and films
    • Academic staff search
  • About us
  • Business and employers
  • Alumni, supporters and giving
  • Current students
  • Staff
  • Accessibility
Search our site
Research-project-banner
Research and knowledge exchange
  • Postgraduate research degrees
  • Research features
  • Research organisation
  • Research environment
  • Groups
    • Groups
    • Applied geosciences
    • Built environment
    • Biomaterials and Drug Delivery
    • Brighton and Sussex Medicines Optimisation
    • Chemistry
    • Stress, ageing and disease
    • Ecosystems and environmental management
    • Education
    • Environment and public health
    • Healthcare Practice and Rehabilitation
    • Interdisciplinary Management and Higher Education
    • Management and Employment
    • Mathematics, Statistics and Operations
    • Musculoskeletal
    • Nuclear physics
    • Past human and environment dynamics
    • Paediatrics
    • Product design
    • Sensory neuroscience
    • Social Science Policy
    • Society space and environment
    • Sport and Exercise Science and Medicine
    • Sport, Tourism and Leisure
    • Sustainability and Resilience Engineering
    • Transforming sexuality and gender
    • Values and sustainability
  • Social Science Policy
    • Social Science Policy
    • Research impact
    • Research areas
    • Research projects
    • Collaborations
    • Events
    • About us
  • Research projects
    • Research projects
    • Collaborative Poetics
    • "I will tell you something of my own"
    • Project page
    • Designing healthy prisons for women
    • Making a meal of collaborative learning
    • Material traces
    • Older people: care and self-funding experiences
    • Rehabilitation by design: Influencing change in prisoner behaviour
    • Researching discrimination through poetry: Developing a method of collaborative poetics
    • Resilience and friendships
    • Monitoring, evaluation and impact: Making data work for communities
    • Aesthetics of protest: Visual culture and communication in Turkey
    • Anti-social behaviour enforcement action and young people
    • Brighton Citizens' Health Services Survey
    • Carer Information and Support Programme (CrISP)
    • CCTV: Lessons from a surveillance culture
    • Cheers!
    • Connected Communities projects
    • Dance and dementia
    • Disruption: unlocking low carbon travel
    • Domestic abuse and LGBT people
    • Domestic elder abuse in Japan and England
    • Domestic fire safety evaluation
    • East Sussex carers' break
    • Electronic Patient Records (EPR) evaluation
    • EmERGE
    • ENSUE
    • Fairness in Brighton and Hove: an analysis of public voice
    • Health Trainers in West Sussex
    • Information for healthy living
    • LifeLines
    • Live well with dementia evaluation
    • Mobile phone app for HIV patients
    • Neutralising deviance
    • Older people and human rights
    • Older people wellbeing and participation
    • Older people with sight loss in care homes
    • Older people's experiences of online and offline communities
    • Prison architecture design and technology
    • Protest networks and the Pitchford inquiry
    • Responding to child to parent violence
    • Section 136 in Sussex
    • Service user and practitioner experiences of community treatment orders (CTOs)
    • The Brighton systems knowledge exchange project
    • The problem of personal debt and mental health
    • Social factors, care and Community Treatment Orders (CTOs)
    • Working towards prevention
    • Writing the landscape of everyday life
  • ENSUE

ENSUE

Collaborating with colleagues from Kings College and Imperial College London, our researchers evaluated service user involvement in three mental health NHS foundation trusts. The project addressed the ways in which changes in the organisation and provision of services has impacted involvement and was funded by the National Institute for Health Research (NIHR).

Project timeframe

The research project commenced in 2011 and ended in 2013.

Project aims

The overall aim of this project was to examine how managers and key decision-makers have responded to user involvement activities in mental health and to identify how they facilitate or impede effective patient and public involvement. This is a novel aim, as there is a great paucity of literature on what the impacts of user involvement activities have been, especially in terms of the ability to shape policy agendas and delivery and the responses of key decision-makers.

Our secondary main aim was to look at the changing face of user involvement in mental health where more ‘traditional’ models may be giving way to more of a focus on individual involvement, for example in the area of personalisation.

Specific research questions included: 

  • What have been the impacts of user involvement in mental health in terms of service development, commissioning and personal benefit to users? We have the same research question for frontline staff.
  • How do managers and other key decision-makers respond when mental health service users ask for changes in services or policies?
  • Moving to a more individual level of user involvement, what is the role played by user governors on Trust boards and how do key decision-makers on the boards respond to them?
  • What are the implications of the move to ‘personalisation’ in both health and social care specifically in terms of the role of user-led organisations in brokerage and care planning?
  • What are the underlying assumptions, beliefs and values held by senior managers about the benefits and drawbacks of user involvement in mental health and how do they individually and collectively respond to, facilitate or impede this?

Project findings and impact

It was concluded that SUs and managers are working in a climate of dynamic and complex organisational change, of which user involvement is an integral part, and that this has impacted on the nature of SUI as a new social movement.

Managers need to attend to this in their interactions with SUs and their organisations. The report recommended that more research be carried out on the applicability of personalisation to the field of mental health.

Research team

Professor Marian Barnes

Dee MacDonald

Output

Rose D, Barnes M, Crawford M, Omeni E, MacDonald D, Wilson A. (2014) How do managers and leaders in the National Health Service and social care respond to service user involvement in mental health services in both its traditional and emergent forms? The ENSUE study. Health Services and Delivery Research 2 (10)

Partners

Kings College, London

Imperial College, London

Back to top
  • Facebook
  • Twitter
  • Instagram
  • TikTok
  • YouTube
  • LinkedIn icon

Contact us

University of Brighton
Mithras House
Lewes Road
Brighton
BN2 4AT

Main switchboard 01273 600900

Course enquiries

Sign up for updates

University contacts

Report a problem with this page

Quick links Quick links

  • Courses
  • Open days
  • Order a prospectus
  • Academic departments
  • Academic staff
  • Professional services departments
  • Jobs
  • Privacy and cookie policy
  • Accessibility statement
  • Libraries
  • Term dates
  • Maps
  • Graduation
  • Site information
  • Online shop
  • COVID-19
  • The Student Contract

Information for Information for

  • Current students
  • International students
  • Media/press
  • Careers advisers/teachers
  • Parents/carers
  • Business/employers
  • Alumni/supporters
  • Suppliers
  • Local residents